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Friday, June 29, 2007
Daniel's HospitalizationDaniel
came down with his first respiratory infection on June 21st starting as a simple head cold and quickly spreading
to his chest. Children with SMA have a very weak cough and frequently become very ill with even the simplest colds often leading
to pneumonia. On
Friday the 22nd Daniel was rushed to Primary Children’s Hospital in Salt Lake City due to respiratory distress.
Dad stabilized him in the ambulance using his Bipap machine and oxygen. He was intubated (a breathing tube placed to help
him breath) on the 24th. Doctors are very optimistic Daniel is getting better each day. He is breathing on his own, working
with physical therapy, and happy to see Granny Annie, Grandma Joyce, and Grandpa Lewis. He will be having surgery shortly
to get a feeding tube placed so that we can help him gain some needed weight. His breathing tube will likely be removed after
the surgery and hopefully Daniel will be back to his jolly old self very soon. We will try our best to keep the blog updated as new news arises. Mom is at
the hospital 120 miles away from home and dad is commuting on the weekends to see Daniel because he needs to work at the clinic
in West Wendover.
Please keep Daniel in your prayers in this very great time of uncertainty.
Monday, June 18, 2007
Sunday, June 9th to Sunday, June 17th
Hope all had a Happy
Father's Day or as Daniel says "DaDa" Day! Our weekend was great! Daniel is doing well.
Angie, our PT from Nevada Early Intervention, was here on Tuesday. She always has helpful hints
on how to get Daniel moving and exercising. Angie suggested getting him into the pool as much as possible.
We have a wonderful pool here in West Wendover! Every Monday and Wednesday we have a play date with our
friends at the pool! Daniel loves it!
We are still seeing small movements that we did not see before. We are very
hopeful that his recent treatment will be successful. We pray that it gives him a bit more control and
comfort.
Daniel remains a very happy
baby with tons of smiles for everyone he meets. We are currently planning fundraisers in multiple sites
(all over the country) for August 4th. It seems that everyone wants to celebrate Daniel’s
birthday, even if they cannot be here with him. If anyone wants to participate or plan an event….please
let us know.
Granny Annie had some beautiful
buttons made up with Daniel’s picture. If anyone is interested in having one to wear, please email
us. We have a limited supply but we want everyone that wants to wear one daily…to have it.
We hope to update this blog every week or
two. Please keep checking back for updates.
Saturday, June 9, 2007
Daniel's Trip to the Dominican Republic A recent trip to the Dominican Republic for a very special theraputic treatment. The friends, sights, and fun we
had along the way. Click pictures to enlarge.
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