We are sorry that it has been so long since our last update. Daniel continues to do very well each day. He is off his BiPAP machine all day and uses it only at night for sleep. He is becoming much stronger in his arms and legs again and is pretty much back to his original self since the first hospitalization this summer.

Unfortunately Daniel lost his ability to swallow foods and liquids effectively based on a recent swallow evaluation. We are sad about this but Daniel does not seem to mind so much. He gets his food through his g-tube and now spends less energy struggling to eat and more energy playing and getting stronger. We believe that someday Daniel will be able to eat again as his strength returns.

He has a great new hospital bed that replaced his crib. Now we can better position him so that he is more comfortable and can watch his favorite shows on his mini DVD player. He is still a big Baby Einstein fan but now loves many of the Disney films and especially Sesame Street and ELMO!

The community garage sale in West Wendover was wonderful. The community showed its support by donating many items and the clinic staff helped raise enough money to help us buy him a new assistive stroller and hot tub. Now he will be able to swim and exercise when he wants to and take long excursions in his new stroller.

We are planning another trip to the Dominican Republic in the next few weeks so that Daniel can receive a second experimental treatment involving stem cells. We expect to see some amazing results as before after his 1st treatment.

Daniel is truly an amazing child. We love each day with him.

Please check out our new updated pages. We have added much new content to many of the pages.

Thank you again for your continued support in Daniels Hope.