|
Friday, December 7, 2007
Finally...a posting! Dear All, I have
tried to sit down to update this blog for the last five days. I am not certain where all of my time goes.
It seems like my days wiz by. Daniel turned 16 months old this week. It seemed
like yesterday that we first learned about his diagnosis. It will be a year in a couple of months….certainly
not a date we will celebrate…honestly, Justin and I will probably never be able to look at Valentines the same.
What a shame because we really loved to celebrate the love we have for each other. Instead now I
am sure that we will celebrate the love we have for our precious baby boy! There has been so much
that has happened in the last few months. Daniel got his first “big boy wheelchair.”
He loves it and seems to be able to sit in it longer than his tumble form chairs. We ordered and
received a ramp and tie downs for the van. We are now waiting for the hooks that attach to the wheelchair
to tie it down. Installing all of this will be very difficult but Justin has been reading everything he
can about it. Thank you to all who have donated to Daniel’s Hope Fund. The ramp
and tie downs were over $500.00 and was all paid by donations. I am not sure what we would have done without
his fund. Thanksgiving was great.
Grannie Annie and her friend, Doug, came from Texas to celebrate. Daniel loves to play with Grannie
Annie and practices his “high five” with her each and everyday. Daniel showed off all of his
moves in the hot tub. He loves to swim which makes his aqua therapy easy for us!!! Thanksgiving
dinner was great because Grannie Annie made most of it. It was fun cooking with her. Daniel
sat in the kitchen part of the time. We finally finished celebrating Daniel’s birthday. As most of you know he
was in the hospital on his first birthday. On October 1st we tried to celebrate with the Wright
Family because it was Abbee’s birthday. Daniel fell asleep right before the cake and cupcake part.
(smart boy….he waited until all of his presents were opened!) We saved his cupcake (made special
by Jancee!!!) and took pictures while he helped to celebrate my birthday. He even had a taste of icing!
He loved it! Daniel
had his first haircut. Jancee came over to our house and cut it. It was so long that
he was starting to look like Doc Brown from Back to the Future. It was a fun experience and he was so patient.
I think he doesn’t really care what happens as long as Abbee is around. He really loves her!
I am now going to try to post all of these pictures. Please remember to click on the main
picture to get access to all of the pictures from the same event. We are working feverously trying to get
Christmas cards out. If we do not have your address and you would like a Daniel Christmas card please email
us your address. We love to send pictures of him to all of his loved ones and “fans”.
15 days until Grandma and Grandpa get here! Much love and tons of kisses to all, Connie
|
