Happy New Year! We have so much HOPE for this year. We are hopeful that Daniel will
continue to be well and strong. We are hopeful that researchers will find a way for SMA children to live long and healthy
lives. We are hopeful that there will a CHANGE in laws that will enable Daniel and other children to get stem cell treatment
in this country. We are hopeful that we will give Daniel as much love and joy that he has given us!
Daniel
had a really great Christmas! Grandpa Lou and Grandma Joyce came from New York to spend 10 days. He had so much fun! We had a great traditional Italian/New York Christmas Eve
Dinner. Grandma Joyce really went all out! Matter of fact, she went all out to feed us great food the entire 10
days! Thank you Aunt Dawn for giving us dinner from Honey Baked Hams for Christmas Day! It was so
delicious! We had a great day with friends stopping by…Mike, our friendly pharmacist and Amanda
and her beautiful girls. Thanks for the great new doggie.
We feel very blessed to have received
so many cards, pictures and letters from so many people! Daniel received so many nice presents! We are so appreciative
of everyone who thought of us over the holidays! Extra thanks to Marilyn for the wonderful towel and toys! Since Daniel
has aqua therapy daily he really gets great use from his new towel. We hope you like the pictures of him with it.
Special, special thanks to Veronica Rose for the skate and the great pictures! Wright Family….he may never take
off these new jammies….he loves them so much! There is a special video link that show how much Daniel
loves his new monkey Grannie Annie sent.
Thanks
too…to all…for the wonderful donations for Daniel’s Hope Fund!
Thank you for being so patient with updates! It seems that the days fly by so
fast. We are always so crazy-busy! We rarely have down time but it is because we try
to devote as much time to Daniel as possible!
This week will probably fly by as well…Daniel has a bit of a cold. It seems to be
in his nose verses his chest but we are watching carefully. Please pray that he will get through it without
being hospitalized. He has been very busy with his new books, music and videos. The
Incredibles is his latest video. He will get to see if for the first time tonight. He
laughed so hard at the preview of it on another movie so we could not resist it when we saw it yesterday.
To all of our family in New York….thank you for all of the
active fundraising. It is so wonderful that you all….Grandma Joyce, Grandpa Lou, Aunt Lorraine,Uncle
Larry and others who have started a great holiday fund drive for Daniels Hope Fund. Other fundraising events
will be posted as they begin.
For
all of you in Texas…Grannie Annie has been busy putting a group together to come to Wendover in April. The
Peppermill Casino, here in Wendover, has a plane that will be flying out of Houston on April 2nd. The
trip costs $209.00 pp double and includes air (into Wendover), 3 nights hotel, and airport transfers. If
anyone is interested in coming out please email me and I will pass along the request to Grannie Annie.
I have a ton of emails to answer from many
of you….I promise I will get to them soon! Thanks so much for all of the love and support.
Even though we do not get to messages as fast as we would like, we love hearing from everyone!
One more thing……Thank you to the Wendover Times
who did a great article on Daniel. It was called “Daniel’s Update.” Extra
thanks to the West Wendover Fire Department for having Santa come out to visit all of the kids in town. Daniel
would have not been able to meet Santa if it wasn’t for you guys! Thanks, Thanks, Thanks!!!
Much love to all!
Connie
P.S. I tried to channel a little anger in a creative
way. I posted a powerpoint presentation on youtube. I will put the link with the other video links on Daniel's
picture page. Warning...it has a political edge....all may not agree but thanks for at least viewing...also, the
first picture is one of Daniel when he was intubated...a hard picture but part of my message. If you don't agree
with the message, I hope you at least understand why I felt I had to say what I did! Connie
