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Saturday, November 28, 2009
ThanksgivingHello everyone, This
is Daniel’s Dad, Justin. It has been a while since I’ve wrote. Daniel just had the best visit with Grandma and
Grandpa for Thanksgiving. Grandma held Daniel a lot and even gave him a hair cut, and then Elmo visited! Please check out
the video links at the bottom of the home page to see Daniel’s unforgettable expression. Things
seem to be falling into place for all of us as we approach this holiday season. We are becoming more settled
in our new home. We have been isolating for a few month’s since the H1N1 season hit. We are all finally immunized and
will be letting Daniels therapists back into the home for regular visits; Daniel is very excited about this. We are very excited about the cutting edge research coming out of California for SMA. We believe Hans S. Keirstead
of UC Irvine may possibly hold the key to a possible cure for this devastating disease. We hope that the FDA approves his
clinical trial of stem cells on human SMA models soon. Thank you for reading and hope to speak soon. Justin.
9:09 pm mst
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