http://www.fsma.org/    

An excellent organization in the fight against SMA, they provide family support, money for research, educational materials about SMA, just to name a few. Highly recommended.

http://www.fightsma.org/

Another excellent web site dedicated to legislation and research in the fight against SMA.

http://www.fightsma.org/fightermom.html

This is the place to go to get involved in helping to change legislation and make SMA more of a research priority. These women go to capital hill on a regular basis to fight for change.

http://www.fightsma.org/

Another excellent web site dedicated to legislation and research in the fight against SMA.

http://www.fightsma.org/fightermom.html

This is the place to go to get involved in helping to change legislation and make SMA more of a research priority. These women go to capital hill on a regular basis to fight for change.

http://www.fightsma.org/

Another excellent web site dedicated to legislation and research in the fight against SMA.

http://www.fightsma.org/fightermom.html

This is the place to go to get involved in helping to change legislation and make SMA more of a research priority. These women go to capital hill on a regular basis to fight for change.

http://www.fightsma.org/

Another excellent web site dedicated to legislation and research in the fight against SMA.

http://www.fightsma.org/fightermom.html

This is the place to go to get involved in helping to change legislation and make SMA more of a research priority. These women go to capital hill on a regular basis to fight for change.

http://www.fightsma.org/

Another excellent web site dedicated to legislation and research in the fight against SMA.

http://www.fightsma.org/fightermom.html

This is the place to go to get involved in helping to change legislation and make SMA more of a research priority. These women go to capital hill on a regular basis to fight for change.

http://www.caringbridge.org/visit/veronicarosestonge
Veronica Rose, a great inspiration and the kind of quality of life we want Daniel to have. Veronica is 2 1/2 years old and travels the country with her incredible parents who equipped their car to meet Veronica's needs. We thank Debbie (her mom) for helping us equip our minivan.

www.oursmaangels.com/kyle

Kyle is a recent addition to Daniel's wonderful family of true friends. Kyle also has type I SMA and  was born 11-1-2004. He is another amazing little boy like Daniel. His mom helped Daniel by making him a very special set of pillows to help make him comfortable and position him. What very special people. Please visit and say hello to kyle on his website.